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Leading scientists are now confident of finding an effective treatment within five years for the brutal degenerative disease that affects the nerve cells in the brain and spinal cord.<\/p>\n
This has been made possible by \u00a350million of Government funding secured after the Sun-day Express launched our Fund The Fight To Cure MND crusade joining forces with leading patients, scientists and charities.<\/p>\n
Then-prime minister Boris Johnson pledged the landmark funding on November 14, 2021.<\/p>\n
With the two-year anniversary of this promise on Tuesday, father-of-three Rob, 41, who has been living with MND since 2019, said: \u201cIt is vital to keep banging the drum for the MND community. Time is not something that is on our side. The Government pledge is vital for taking research forward as efficiently as possible.<\/p>\n
\u201cI was pleased when I met Rishi Sunak this year. He gave me his personal commitment to continue to invest in MND research \u2013 we now need to get the job done.<\/p>\n<\/div>\n
\u201cI remain confident that, together, we will put an end to MND.\u201d<\/p>\n
Last week Rob published a children\u2019s book about friendship, With You Every Step, with his close friend Kevin Sinfield.<\/p>\n
Former teammate Kevin, 43, coach of England\u2019s rugby union team, will attempt his fourth challenge to support those affected by MND next month.<\/p>\n
The former Leeds Rhino star, who has raised more than \u00a38million with his previous three challenges, plans to run a marathon every day for a week in seven cities.<\/p>\n
Kevin carried Rob over the finish line at the inaugural Rob Burrow Leeds Marathon in May, after pushing his friend in a specially-adapted wheelchair.<\/p>\n
During the official launch of the National MND Research Institute earlier this month, Health Secretary Steve Barclay said \u00a335million of the \u00a350million promised two years ago has been allocated.<\/p>\n<\/div>\n
He hopes the remaining \u00a315million will go into \u201cclinical research trials with patients\u201d within the next 18 months.<\/p>\n
Professor Ammar Al-Chalabi, co-director of the new institute, said this funding has made a real difference to research.<\/p>\n
He said: \u201cI think we can find an effective therapy for MND within the five-year research plan. A cure is a much bigger deal \u2013 that will take a long time, but a treatment that
is effective, definitely. There are still hurdles to overcome but it is working nicely, it is what we wanted.\u201d<\/p>\n
Tanya Curry, chief executive of the MND Association, said: \u201cIt feels like the funding is really coming through now and the profile of this disease has gone through the roof. It\u2019s fabulous because it means more people are aware. People with MND do not have time to waste, so we have to get there fast.\u201d<\/p>\n
With You Every Step by Rob Burrow and Kevin Sinfield (Macmillan, \u00a310) is out now. 50p from every copy sold will be split between the MND Association and Leeds Hospitals Charity. Visit expressbookshop.com or call Express Bookshop on 0203176 3832. Free UK P&P on orders over \u00a325<\/strong><\/p>\n<\/div>\n[ad_2]\n","protected":false},"excerpt":{"rendered":" [ad_1] Leading scientists are now confident of finding an effective treatment within five years for the brutal degenerative disease that affects the nerve cells in the brain and spinal cord. This has been made possible by \u00a350million of Government funding secured after the Sun-day Express launched our Fund The Fight To Cure MND crusade joining …<\/p>\n","protected":false},"author":1,"featured_media":10906,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1023],"tags":[],"_links":{"self":[{"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/posts\/10905"}],"collection":[{"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/comments?post=10905"}],"version-history":[{"count":0,"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/posts\/10905\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/media\/10906"}],"wp:attachment":[{"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/media?parent=10905"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/categories?post=10905"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/farratanews.online\/wp-json\/wp\/v2\/tags?post=10905"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}